Rare Disease Diversity Coalition Archives

RARE DISEASE DIVERSITY COALITION FORMED TO END RACIAL DISPARITIES IN RARE DISEASE DIAGNOSIS, RESEARCH AND TREATMENT

February 28, 2021 admin 0

By Black Women’s Health Imperative the Black Women’s Health Imperative (BWHI) hosts the first public meeting of the Rare Disease Diversity Coalition (RDDC). RDDC seeks to address the pressing challenges faced by marginalized populations and identify potential solutions. Led by […]

Black Women’s Health Imperative- “Charting the Path Forward for Equity in Rare Diseases”

February 23, 2021 admin 0

Watch Event today at 1:00- 3:00 pm EST More than 30 million Americans—nearly 1 in 10—have a rare disease. For rare disease patients of color, racial disparities have caused a crisis. The Black Women’s Health Imperative launched the Rare Disease […]

Black Women’s Health Imperative ANNOUNCES The Rare Disease Diversity Coalition’s “RISE for RARE” Campaign

November 20, 2020 admin 0

The RISE for Rare Multi-Channel Campaign Will Build Awareness Around Rare Disease and Its Impact on Communities of Color The Black Women’s Health Imperative (BWHI) announced the launch of a comprehensive multi-channel campaign entitled RISE for Rare. This campaign is the first […]