Patient-Reported Outcomes Measurement Opportunities through Equity (PROMOTE): Seeking Endometrial Cancer Survivors for New Study on Quality of Life

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The Foundation for Women’s Cancer (FWC) and the Society for Gynecologic Cancer (SGO) is excited to announce a new study, PROMOTE (Patient-Reported Outcomes Measurement Opportunities through Equity). This study asks endometrial cancer survivors their opinion on their quality of life and any symptoms from endometrial cancer and/or its treatment. While all races and ethnicities are welcome, we are specifically seeking Black endometrial cancer survivors at this time.

We hope PROMOTE can improve upon a clinically meaningful survey that impacts how doctors treat patients and reflects the symptoms and concerns identified as most important by diverse women who have had endometrial cancer within the past 2 years.

This study will involve one to two telephone or virtual interviews and an online survey. Participants can earn up to $250 for their time and participation.

Survivors over 18 years of age that were diagnosed with endometrial cancer in the past 2 years, are eligible; visit this link or call 224-521-0681 for more information.

 

 

FREQUENTLY ASKED QUESTIONS

What are gynecologic cancers?

Gynecologic cancers are the uncontrolled growth and spread of abnormal cells originating in the female reproductive organs, including the cervix, ovaries, uterus, fallopian tubes, vagina and vulva.

What causes gynecologic cancers?

There are many factors that cause gynecologic cancers. Medical research has discovered that some classes of genes, called oncogenes and tumor suppressor genes, promote the growth of cancer. The abnormal function of these genes can be acquired—e.g., through smoking, aging, environmental influences—or inherited. Almost all cervical cancers and some cancers of the vagina and vulva are caused by a virus known as HPV, or Human Papillomavirus.

Can gynecologic cancers be prevented?

Screening and self-examinations conducted regularly can result in the detection of certain types of gynecologic cancers in their earlier stages, when treatment is more likely to be successful and a complete cure is a possibility. Diet, exercise and lifestyle choices play a significant role in the prevention of cancer. Additionally, knowledge of family history can increase the chance of prevention or early diagnosis by determining if someone may have a gene which makes them susceptible to cancer.

Who treats gynecologic cancers?

Gynecologic cancers should be treated by a specialist with advanced training and demonstrated competence, such as a gynecologic oncologist. A gynecologic oncologist is a board-certified obstetrician/gynecologist who has an additional three to four years of specialized training in treating gynecologic cancers from an American Board of Obstetrics and Gynecology (ABOG)-approved fellowship program. This subspecialty program provides training in the biology and pathology of gynecologic cancers, as well as in all forms of treatment for these diseases, including surgery, radiation, chemotherapy and experimental treatments.

How are gynecologic cancers treated?

Gynecologic cancers are treated by using one or more of the following: surgery, radiation therapy or chemotherapy. The choice of therapy(s) depends on the type and stage of the cancer.

Who is at risk?

Everyone with female reproductive organs is at risk for developing a gynecologic cancer. The American Cancer Society estimates about 109,000 new cases diagnosed and approximately 33,000 deaths from gynecologic cancers in the U.S. each year.

 

FOUNDATION MISSION & VISION

Mission

To bring together all communities of advocates, patients, caregivers, partners and the healthcare team to eradicate or lessen the impact of gynecologic cancer. We will achieve this through research, education and public awareness.

Vision

A world where everyone has the power to impact, prevent or overcome a diagnosis of gynecologic cancer.

Core Values

  • Awareness: Promote public awareness of gynecologic cancer prevention, early diagnosis and optimal treatment.
  • Diversity and Inclusion: Commit to cultural humility and diversity of thought and engagement.
  • Education: Provide innovative education and continuous learning.
  • Leadership: Set an example of integrity, quality and excellence to eradicate gynecologic cancer.
  • Partnership: Support efforts of the Society of Gynecologic Oncology (SGO) to eradicate gynecologic cancers.
  • Research: Advance innovation and discovery to eradicate gynecologic cancer.
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